Welcome to the SCDSsupport.org web page. This group was started on February 16, 2003 by Mindy Haines. She had been battling Superior Canal Dehiscence Syndrome (SCDS) and was tired of searching the web only to find medical reports and jargon. She really wanted to get in touch with someone else who might understand just how miserable this condition is. She felt a true need to share her experiences and find out what others were going through.

On a leap of faith, Mindy created a Yahoo group for SCDSsupport. She then waited and prayed that others would find it and join. On May 8, 2003, her prayers were answered when the first new member joined the group. Since that time, the group has expanded to 85 members (as of July 23, 2007) in at least 4 different countries.

If you have come to this sight seeking information about what SCDS is, a great place to start is on our links page. This page will direct you to a multitude of websites that will define SCDS, it's treatment, and research.

This group has been a true blessing to the many who suffer from or assist someone suffering from Superior Canal Dehiscence Syndrome. It has helped many to overcome the feeling that they are alone in this battle. Many who suffer from SCDS feel that others consider them a crazy hypochondriac who just wants to be lazy or seek attention.This group has helped them discover that their symptoms are real and their suffering can be understood.

This website is a gift from Mindy and those on this list who have graciously given of their time and funds to make this group more visible to the general public. We hope and pray that you will find it as helpful as we have. Please browse the links to the left, review the forum (membership is required) and photos, and join us by logging into and adding your own comments and questions to our forum.

To contact us, please email Mindy Haines. Please note that the forum is designed as a place for you to share your story and ask questions. Mindy cannot respond to all of the emails she receives. Please direct all emails regarding your story, your questions, doctors, testing, etc directly to the forum. The forum is where you will find the most help!

IMPORTANT:

All information contained in this web site is intended for informational purposes only and is not intended to replace and should not be interpreted or relied upon as professional advise. It is strongly recommended that you consult a physician to assess individual conditions and needs.